Across the country, people with disabilities are losing access to the services that allow them to live independently in their communities. Staff shortages are worsening, waiting lists are growing, and the foundation of community-based disability services is at risk. That’s why Fello joined advocates from across the country for ANCOR’s 2025 Policy Summit & Hill Day in Washington, D.C., in September.
Hill Day brings advocates, providers, and community leaders together to meet directly with members of Congress and their staff, sharing the real challenges facing people with disabilities and the organizations that support them. This year, more than 300 participants gathered—and when hundreds of providers and advocates gather on Capitol Hill, lawmakers listen.
“Being on Capitol Hill for Hill Day was a powerful reminder of what’s at stake. Every conversation we had with lawmakers was about ensuring people with disabilities can continue living with dignity and independence in their communities,” said Rylie Shewbridge, Director of Government Relations External Relations. “At Fello, we see firsthand how staffing shortages and underfunding threaten those opportunities, and we’re committed to being part of the solution.”
What is ANCOR?
For over 50 years, ANCOR has been a leading voice in shaping policy and driving solutions that strengthen the ability of community-based providers to support people with intellectual and developmental disabilities. With 2,500 members across the country, ANCOR is dedicated to making inclusion a reality. The organization not only advocates at the federal level, but also equips providers with the resources and knowledge they need to deliver high-quality, person-centered services.
The Crisis Facing Community-Based Services
This year’s advocacy focused on a growing crisis in the Medicaid-funded community-based support system. Medicaid is a lifeline for many people with disabilities, providing access to essential services that promote independence, skill development, and opportunity. Yet, chronic underfunding, workforce shortages, and new administrative barriers are threatening that access.
Fello’s team joined advocates nationwide in urging Congress to:
- Invest in Home and Community-Based Services (HCBS): Pass the HCBS Relief Act (HR 4029/S 2076), which would provide a two-year increase to the federal Medicaid match rate (FMAP). This investment would help providers strengthen their workforce and ensure stable, high-quality services for people with disabilities.
- Protect Against Cuts and Red Tape: Oppose proposals that reduce Medicaid funding or impose burdensome requirements—such as frequent redeterminations and work requirements—that risk pushing people with disabilities off Medicaid.
- Address Workforce Challenges: Support better pay, benefits, and recognition for direct support professionals (DSPs), to compete with other industries offering entry-level positions.
Throughout the day, Fello advocates met with congressional offices, sharing stories from people with disabilities, family members, and DSPs who are directly impacted by these challenges. They thanked lawmakers for their support, encouraged co-sponsorship of key bills, and reinforced the urgent need for action.
Hill Day was an important reminder that when advocates and providers stand together, they amplify voices and drive meaningful change.
Take Action. Stay Connected.
Your voice matters. By urging your representatives to support the HCBS Relief Act, you can help strengthen community-based services and ensure people with disabilities have the resources they need to live independent, connected lives.
Fello will continue to champion the rights of people with disabilities every day. Stay up to date on the latest legislative updates and ways to take action by joining our newsletter and connecting with us on social media.